Description
The Spanish SDM Special Interest Group is focused on promoting and building shared decision making in the Spanish speaking region. It consists of SDM researchers, clinician-researchers and individuals in health policy and management. It aims to increase awareness of SDM and build collaboration and support for SDM in the Spanish speaking region.
For any questions about this special interest group or if you wish to join, please email the chair Lilisbeth Perestelo-Pérez.
Lilisbeth Perestelo-Pérez (Tenerife, Canary Islands, Spain)
Affiliation: Director of the Evaluation Unit of the Canary Islands Health Service (SESCS). Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS). Tenerife, Spain.
SDM Projects:
Dr. Perestelo-Perez is coordinating the Person-Centred Care (PCC) Group and the PyDeSalud.com Web Platform in the Evaluation Unit of the Canary Islands Health Service. Her main research areas are based on the application of mixed methods (qualitative and quantitative) for the design, development, evaluation and implementation of interventions based on the best scientific evidence to promote PCC (as patient decision aids, training for healthcare professionals to promote shared decision-making between patients and healthcare professionals).
Perestelo-Perez L, Rivero-Santana A, Alvarez-Perez Y, Duarte-Díaz A, Ramos-García V, Torres-Castaño A, Abt-Sacks A, Toledo-Chavarri A, Alonso-Coello P, Orrego C, Serrano-Aguilar P. Shared decision-making in Spain in 2022: An updated revision of the current situation. Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:122-128. doi: 10.1016/j.zefq.2022.04.018. Epub 2022 May 25. PMID: 35624010. Shared decision-making in Spain in 2022: An updated revision of the current situation – PubMed (nih.gov)
Perestelo-Perez L, Rivero-Santana A, Torres-Castaño A, Ramos-Garcia V, Alvarez-Perez Y, Gonzalez-Hernandez N, Buron A, Pignone M, Serrano-Aguilar P. Effectiveness of a decision aid for promoting colorectal cancer screening in Spain: a randomized trial. BMC Med Inform Decis Mak. 2019 Jan 10;19(1):8. doi: 10.1186/s12911-019-0739-6. PMID: 30630487; PMCID: PMC6327535. Effectiveness of a decision aid for promoting colorectal cancer screening in Spain: a randomized trial – PubMed (nih.gov)
Perestelo-Perez L, Rivero-Santana A, Sanchez-Afonso JA, Perez-Ramos J, Castellano-Fuentes CL, Sepucha K, Serrano-Aguilar P. Effectiveness of a decision aid for patients with depression: A randomized controlled trial. Health Expect. 2017 Oct;20(5):1096-1105. doi: 10.1111/hex.12553. Epub 2017 Mar 10. PMID: 28295915; PMCID: PMC5600223. Effectiveness of a decision aid for patients with depression: A randomized controlled trial – PubMed (nih.gov)
Alezandra Torres-Castaño
Affiliation: Canary Islands Health Research Institute Foundation (FIISC), Tenerife, Spain. Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain. Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS), Tenerife, Spain.
SDM Projects:
In the field of SDM, she has experience in the development and evaluation of decision aids. In addition to developing various types of educational materials aimed at promoting the SDM model, tailored for individuals of varying ages, genders, and health conditions. Her background also encompasses training health professionals in SDM and the person-centered care model Currently her main interest is the formulation and evaluation of experiences of implementation of the model of SDM.
Email: atorrcas@sescs.es
- Torres-Castaño A, Perestelo-Pérez L, Koatz D, Ramos-García V, Gonzalez-Gonzalez A, Toledo-Chávarri A, Bermejo-Caja C, Gonzalez-Pacheco H, Abt-Sacks A, Pacheco-Huergo V, Orrego C. 2024. Health professionals’ perceptions about the implementation of shared decision-making in primary care: a qualitative study from a virtual community of practice. International Journal of Integrated Care (In press).
- Peters LJ, Torres-Castaño A, van Etten-Jamaludin FS, Perestelo Perez L, Ubbink DT. What helps the successful implementation of digital decision aids supporting shared decision-making in cardiovascular diseases? A systematic review. Eur Heart J Digit Health. 2022 Nov 10;4(1):53-62. doi: 10.1093/ehjdh/ztac070. PMID: 36743877; PMCID: PMC9890083.
- Torres-Castaño A, Perestelo-Pérez L, Duarte-Díaz A, Toledo-Chávarri A, Ramos-García V, Álvarez-Pérez Y, Serrano-Aguilar P. Information needs and research priorities for fertility preservation in women with breast cancer: patients and experts’ perspectives. European Journal of Cancer Care . 2021 Jan;30(1):e13359. doi: 10.1111/ecc.13359. Epub 2020 Nov 15. PMID: 33191537.
Vanesa Ramos-García (Tenerife, Canary Islands, Spain)
Affiliation: Canary Islands Health Research Institute Foundation (FIISC). Evaluation Unit of the Canary Islands Health Service (SESCS). Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS). Tenerife, Spain.
SDM Projects:
Vanesa Ramos-García leads a project on person-centered care for patients with diabetic macular edema. She focuses on promoting the design, development, and evaluation of decision support tools linked to the development of clinical practice guidelines, evaluating Virtual Communities of Practice (VCoP), and empowering chronic patients and healthcare professionals.
Email: vanesa.ramosgarcia@sescs.es
- Ramos-García V, Perestelo-Pérez L, Rivero-Santana A, Peñate-Castro W, Duarte-Díaz A, Álvarez-Pérez Y, et al. Decision aids linked to the recommendations in clinical practice guidelines: results of the acceptability of a decision aid for patients with generalized anxiety disorder. BMC Medical Informatics and Decision Making. 2022 Dec 30;22(1):171. https://doi.org/10.1186/s12911-022-01899-2
- Ramos-García V, Rivero-Santana A, Duarte-Díaz A, Perestelo-Pérez L, Peñate-Castro W, Álvarez-Pérez Y, et al. Shared Decision-Making and Information Needs among People with Generalized Anxiety Disorder. European Journal of Investigation in Health, Psychology and Education. 2021 May 21;11(2):423–35. https://doi.org/10.3390/ejihpe11020031
- Perestelo-Perez, L., Rivero-Santana, A., Alvarez-Perez, Y., Duarte-Díaz, A., Ramos-García, V., Torres-Castaño, A., … & Serrano-Aguilar, P. (2022). Shared decision-making in Spain in 2022: an updated revision of the current situation. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 171, 122-128. https://doi.org/10.1016/j.zefq.2022.04.018
Analía Abt-Sacks (Tenerife, Canary Islands, Spain)
Affiliation: Canary Islands Health Research Institute Foundation (FIISC), Tenerife, Spain. Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain. Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS), Tenerife, Spain.
SDM Projects:
Her primary focus is on qualitative research and participatory action research, particularly centered around patients’ experiences, digital health literacy, and empowering patients for self-care. Additionally, she has been actively involved in research projects aimed at promoting the Shared Decision Making model in clinical practice. Since 2008, she has served as an associate researcher in the development of the informative website PyDeSalud.com, and has contributed to various projects related to Person-Centered Care (PCC) and the humanization of health services.
Email: analia.abtsacks@sescs.es
- Perestelo-Perez L, Rivero-Santana A, Alvarez-Perez Y, Duarte-Díaz A, Ramos-García V, Torres-Castaño A, Abt-Sacks A, Toledo-Chavarri A, Alonso-Coello P, Orrego C, Serrano-Aguilar P. Shared decision-making in Spain in 2022: An updated revision of the current situation. Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:122-128. doi: 10.1016/j.zefq.2022.04.018. Epub 2022 May 25. PMID:35624010. https://doi.org/10.1016/j.zefq.2022.04.018
- Álvarez-Pérez Y, Duarte-Díaz A, Toledo-Chávarri A, Abt-Sacks A, Ramos-García V, Torres-Castaño A, Rivero-Santana A, Perestelo-Pérez L. Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer. Int J Environ Res Public Health. 2023 Feb 22;20(5):3922. doi: 10.3390/ijerph20053922. PMID: 36900935; PMCID: PMC10001393. https://doi.org/10.3390/ijerph20053922
Ana Toledo Chávarri (Spain)
Affiliation: Canary Islands Health Research Institute Foundation (FIISC), Tenerife, Spain. Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain. Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS), Tenerife, Spain.
SDM Projects:
She is a is a qualitative health researcher with long term experience in participatory techniques, and patient-centered care. She coordinates the Patient Involvement Strategy in the Spanish Network of Agencies for Assessing National Health System Technologies and Performance (RedETS) She has design and conducted cocreation processes to develop digital tools form patient empowerment and Shared Decision Making (SDM). In SDM she has been involved in research projects and publications and in the development of the website PyDeSalud.com.
Email: anatoledochavarri@sescs.es
- Perestelo-Perez L, Rivero-Santana A, Alvarez-Perez Y, Duarte-Díaz A, Ramos-García V, Torres-Castaño A, Abt-Sacks A, Toledo-Chavarri A, Alonso-Coello P, Orrego C, Serrano-Aguilar P. Shared decision-making in Spain in 2022: An updated revision of the current situation. Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:122-128. doi: 10.1016/j.zefq.2022.04.018. Epub 2022 May 25. PMID:35624010. https://doi.org/10.1016/j.zefq.2022.04.018
- Álvarez-Pérez Y, Duarte-Díaz A, Toledo-Chávarri A, Abt-Sacks A, Ramos-García V, Torres-Castaño A, Rivero-Santana A, Perestelo-Pérez L. Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer. Int J Environ Res Public Health. 2023 Feb 22;20(5):3922. doi: 10.3390/ijerph20053922. PMID: 36900935; PMCID: PMC10001393. https://doi.org/10.3390/ijerph20053922
- Toledo-Chavarri, A., Delgado, J., & Rodríguez-Martín, B. (2023). Perspectives of women living with type 1 diabetes regarding preconception and antenatal care: A qualitative evidence synthesis. Health expectations : an international journal of public participation in health care and health policy, 27(1), e13876. Advance online publication. https://doi.org/10.1111/hex.13876
Montse Moharra (Barcelona, Spain)
Affiliation: Coordinator of the Shared Decision Making Programme of the Agency of Health Quality and Assessment of Catalonia (AQuAS). CIBER of Epidemiology and Public Health.
SDM Projects:
Montse Moharra is coordinating the Shared Decision Web Platform in AQuAS. Her main research areas are based on the design, development, implementation and evaluation of patient decision aids to promote Shared decision making. One of her areas of work is on Patient-Reported Experience Measures (PREMs), with a focus on understanding, analyzing, and improving the quality of care through the evaluation of patient-reported experiences.
Email: mmoharra@gencat.cat
Robles-Sanchez MA, Moharra M, Bosch-Farré C, Hernández-Leal MJ, Montalban X, Sastre-Garriga J, Ramió-Torrentà L, Bertran-Noguer C. Views of Multiple Sclerosis Patients About Key Elements for a Decision Aid: A Qualitative Study. J Neurosci Nurs. 2023 Oct 1;55(5):164-170. doi: 10.1097/JNN.0000000000000721. Epub 2023 Aug 8. PMID: 37527935.
Reyes-Martí L, Rubio-Rico L, Ortega-Sanz L, Raigal-Aran L, de la Flor-López M, Roca-Biosca A, Valls-Fonayet F, Moharra-Francés M, Escuriet-Peiro R, de Molina-Fernández MI. Contraceptive counselling experiences in Spain in the process of creating a web-based contraceptive decision support tool: a qualitative study. Reprod Health. 2021 Nov 27;18(1):237. doi: 10.1186/s12978-021-01254-0. PMID: 34838040; PMCID: PMC8626746.
Pablo Alonso Coello (Barcelona, Spain)
Affiliation: Director of the Epidemiology, Public Health and Primary Care Area at the Research Institute Sant Pau, Barcelona, Spain. CIBER of Epidemiology and Public Health). Guideline International Network Board Trustee, GRADE Guidance Group and GuiaSalud Scientific Committee member.
SDM Projects:
Development, implementation and evaluation of patient decision aids, including the incorporation of these tools into health care guidelines. Recently, we have an interest in the evaluation of the incorporation of decision analysis into SDM.
Email: palonso@santpau.cat
Web: https://www.recercasantpau.cat/en/group/clinical-epidemiology-and-healthcare-services/
- León-García M, Humphries B, Morales PR, Gravholt D, Eckman MH, Bates SM, Suárez NRE, Xie F, Perestelo-Pérez L, Alonso-Coello P. Assessment of a venous thromboembolism prophylaxis shared decision-making intervention (DASH-TOP) using the decisional conflict scale: a mixed-method study. BMC Med Inform Decis Mak. 2023 Nov 6;23(1):250. https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-023-02349-3
- Humphries B, León-García M, Quispe ENG, Canelo-Aybar C, Valli C, Pacheco-Barrios K, Agarwal A, Mirabi S, Eckman MH, Guyatt G, Bates SM, Alonso-Coello P, Xie F. More work needed on decision analysis for shared decision-making: A scoping review. J Clin Epidemiol. 2022 Jan;141:106-120. https://www.jclinepi.com/article/S0895-4356(21)00317-6/abstract
- Agoritsas T, Heen AF, Brandt L, Alonso-Coello P, Kristiansen A, Akl EA, Neumann I, Tikkinen KA, Weijden Tv, Elwyn G, Montori VM, Guyatt GH, Vandvik PO. Decision aids that really promote shared decision making: the pace quickens. BMJ. 2015 Feb 10;350:g7624. https://www.bmj.com/content/350/bmj.g7624.long
Montserrat León García (Madrid, Spain)
Affiliation: Department of Pediatrics, Obstetrics, Gynaecology and Preventive Medicine, Universidad Autónoma de Barcelona, Barcelona, Spain. Knowledge and Evaluation Research Unit, Department of Medicine, Mayo Clinic, Rochester, MN, USA.
SDM Projects:
Montserrat León García is a PhD candidate of the programme Methodology of Biomedical Research and Public Health of the University Autónoma de Barcelona; with her thesis on SDM in thromboprophylaxis during pregnancy. She is also a research fellow at: Mayo Clinic (Knowledge and Evaluation research unit- Ker unit); Cochrane Response (UK); Research Institute Sant Pau; and, at the Agency of Health Quality and Assessment of Catalonia (AQuAS). Her main research areas are based on the application of mixed methods (qualitative and quantitative) for the design, development, evaluation and implementation of interventions based on the best scientific evidence (as patient decision aids, training for healthcare professionals to promote shared decision-making between patients and healthcare professionals). She also has strong skills in conducting systematic reviews; developing clinical practice guidelines and CPG quality assessment; and the assessment of equity and social determinants of health.
Email: monselg8@gmail.com
León-García M, Humphries B, Maraboto A, Rabassa M, Boehmer KR, Perestelo-Perez L, Xie F, Pelayo I, Eckman M, Bates S, Selva A, Alonso-Coello P. Women’s values and preferences on low-molecular-weight heparin and pregnancy: a mixed-methods systematic review. BMC Pregnancy Childbirth. 2022 Oct 5;22(1):747. https://bmcpregnancychildbirth.biomedcentral.com/articles/10.1186/s12884-022-05042-x
León-García M, Humphries B, Morales PR, Gravholt D, Eckman MH, Bates SM, Suárez NRE, Xie F, Perestelo-Pérez L, Alonso-Coello P. Assessment of a venous thromboembolism prophylaxis shared decision-making intervention (DASH-TOP) using the decisional conflict scale: a mixed-method study. BMC Med Inform Decis Mak. 2023 Nov 6;23(1):250. https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-023-02349-3
Ruissen MM, Montori VM, Hargraves IG, Branda ME, León García M, de Koning EJ, Kunneman M. Problem-based shared decision-making in diabetes care: a secondary analysis of video-recorded encounters. BMJ Evid Based Med. 2023 Jun;28(3):157-163. https://ebm.bmj.com/content/28/3/157.long
Ena Niño de Guzmán Quispe (Barcelona, Spain)
Affiliation: Quality Department – Hospital Universitari Vall d’Hebron
SDM Projects:
She collaborates in the project of implementation of shared decision-making in a tertiary university hospital in Barcelona.
She has experience in synthesis methods of patients perspectives, GRADE, clinical guidelines development and decision aids
Niño de Guzmán Quispe E, Martínez García L, Orrego Villagrán C, Heijmans M, Sunol R, Fraile-Navarro D, Pérez-Bracchiglione J, Ninov L, Salas-Gama K, Viteri García A, Alonso-Coello P. The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews. Patient. 2021 Nov;14(6):719-740. doi: 10.1007/s40271-021-00514-2. Epub 2021 Apr 19. PMID: 33871808; PMCID: PMC8563562.
Niño-de-Guzmán E, Bracchiglione J, Vásquez-Mejía A, de Graaf G, Rocha Calderón C, Alonso-Coello P. How Do Patients With Type 2 Diabetes Mellitus Value the Importance of Outcomes? An Overview of Reviews. Value Health. 2023 Dec;26(12):1782-1794. doi: 10.1016/j.jval.2023.07.003. Epub 2023 Jul 27. PMID: 37516195.
Van der Gaag M, Heijmans M, Ballester M, Orrego C, Niño de Guzmán E, Ninov L, Rademakers J. Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy. Front Public Health. 2022 May 11;10:842462. doi: 10.3389/fpubh.2022.842462. PMID: 35646791; PMCID: PMC9130718.
Karla Salas-Gama (Barcelona, Spain)
Affiliation: Head of the Quality Department – Hospital Universitari Vall d’Hebron
SDM Projects:
Currently focused on the comprehensive implementation of shared decision-making in a tertiary university hospital in Barcelona. She has experience in the development, implementation and evaluation of patient decision aids.
Email: karla.salas@vallhebron.cat
- Toapanta N, Salas-Gama K, Pantoja PE, Soler MJ. The role of low health literacy in shared treatment decision-making in patients with kidney failure. Clin Kidney J. 2023;16(Suppl 1):i4-i11. doi:10.1093/ckj/sfad061
- Salas-Gama K, Díaz JM, Coronado J, et al. Patient decision aids for adults with advanced chronic kidney disease with a medical recommendation to start dialysis: a scoping review protocol. JBI Evid Synth. 2021;19(12):3347-3354. doi:10.11124/JBIES-20-00437
- Salas-Gama K, Onakpoya IJ, Coronado Daza J, Perera R, Heneghan CJ. Recommendations of high-quality clinical practice guidelines related to the process of starting dialysis: A systematic review. PLoS One. 2022;17(6):e0266202. Published 2022 Jun 13. doi:10.1371/journal.pone.0266202
Ana Martí Delgado (Barcelona, Spain)
Affiliation: Head of Attention and Citizen Participation Department – Hospital Universitari Vall d’Hebron
SDM Projects:
Currently focused on driving the shared decision-making strategy through a defined and consensus-based model to implement shared decisions in a tertiary hospital in a structured, viable, and evaluable manner with citizen participation.
Email: ana.marti@vallhebron.cat
Lucía Prieto Remón (Zaragoza, Aragón, Spain)
Affiliation: Health Technology Assessment Analyst at Aragon Health Sciences Institute (IACS), Spanish National HTA Network (RedETS), Clinical Practice Guidelines Programme in the Spanish National Health System (GuíaSalud)
SDM Projects:
Implementation of Clinical Practice Guidelines recommendations in Shared Decision-Making. Methodological Manual
Email: lprietor.iacs@aragon.es
Web: https://www.iacs.es/instituto-aragones-ciencias-la-salud/
- Work group of the Methodological Manual “Implementation of recommendations of Clinical Practice Guidelines to Shared Decision-Making”. Madrid: Ministry of Health; Zaragoza: Aragonese Institute for Health Sciences (IACS); 2022. Clinical Practice Guidelines in the NHS.
María José Vicente-Edo (Zaragoza, Aragón, Spain)
Affiliation: HTAi methodologist. Institute of Health Science of Aragon (IACS). Spanish Network of Agencies for Health Technology Assessment (RedETS). Zaragoza, Spain.
SDM Projects:
Development of methodologies to elaborate patient decision tools from clinical guidelines.
Development and implementation of patient decision aids as part of the development of clinical guidelines.
Email: mjvicente.iacs@aragon.es
Web: https://www.iacs.es/instituto-aragones-ciencias-la-salud/
Work group of the Methodological Manual “Implementation of recommendations of Clinical Practice Guidelines to Shared Decision-Making”. Madrid: Ministry of Health; Zaragoza: Aragonese Institute for Health Sciences (IACS); 2022. Clinical Practice Guidelines in the NHS.
Anna Selva Olid (Barcelona, Spain)
Affiliation: Head of the Cancer Screening Office and President of the Parc Taulí Hospital Guidelines Committee. Parc Taulí University Hospital. Institute of Research and Innovation Parc Taulí (I3PT-CERCA).
Associate professor in Autonomous University of Barcelona (Department of pediatrics, gynecology and obstetrics and preventive medicine and public health).
SDM Projects:
Head of the CyDESA project, whose objective is to gather the experience and satisfaction of participants in colorectal cancer screening gathering patient experience with SDM during the screening, diagnostic and treatment process of colorectal cancer. Co-investigador of other patient-centered projects like “The development and assessment of an intervention on Person-Centered Care and Digital Health Literacy in Breast Cancer” and “ The perspective of the patient undergoing treatment with opioid agonists in the prioritization of outcome variables: Mixed systematic review and development of a patient-centered scale”. She has broad experience in knowledge synthesis methods and in methods for including patient views and preferences in the development of clinical practice guidelines and derived products.
Email: aselva@tauli.cat or annaolid@gmail.com
Selva A; Mosconi G; Cacitti S; et al; 2023. Participants’ satisfaction with colorectal cancer screening programs: A systematic review. Preventive Medicine. Elsevier. 175-107706. https://doi.org/10.1016/j.ypmed.2023.107706
- Selva A; Selva C; Alvarez-Perez Y; Torà N; López P; Terraza-Núñez R;Rodriguez V; Solà I. 2021. Satisfaction and experience with colorectal Cancer screening: a systematic review of validated patient reported outcome measures. BMC Medical Research Methodology. https://doi.org/10.1186/s12874-021-01430-7
- Selva A; Sanabria AJ; Niño de Guzman E; et al. 2019. Colorectal cancer guidelines seldom include the patient perspective. Journal of Clinical Epidemiology. 116, pp.84-97.10.1016/j.jclinepi.2019.08.008
María Inmaculada de Molina Fernández, (Tarragona, Spain)
Affiliation: CNM, RN, MSN, PhD, Lecturer – Universitat Rovira i Virgili, Tarragona, Coordinator of Research Group 2021 SGR 161, Nursing Department, Campus Catalunya.
SDM Projects:
- He has been part of the research team that has led the research and design of two decision-making web tools (HATD). The first for women with breast cancer, indication of mastectomy and possibility of reconstruction, published in 2016 and updated in January 2022 and the second to facilitate the choice of the contraceptive method that best suits each user, published in March 2021. Both have been published in Catalan and Spanish on the “Decisions Compartides” website, an innovative initiative that promotes a paradigm shift in health care, which is coordinated and managed by the Health Quality and Assessment Agency of Catalonia (AQuAS):
- http://decisionscompartides.gencat.cat/es/decidir-sobre/anticoncepcio/
- https://decisionscompartides.gencat.cat/ca/decidir-sobre/reconstruccio-mamaria-despres-de-cirurgia-per-cancer/
De Molina-Férnandez, M.I., Raigal-Aran, L., de la Flor-Lopez, M. et al. The effectiveness of a digital shared decision-making tool in hormonal contraception during clinical assessment: study protocol of a randomized controlled trial in Spain. BMC Public Health 19, 1224 (2019). https://doi.org/10.1186/s12889-019-7572-9
Reyes-Martí L, Rubio-Rico L, Ortega-Sanz L, Raigal-Aran L, de la Flor-López M, Roca-Biosca A, Valls-Fonayet F, Moharra-Francés M, Escuriet-Peiro R, de Molina-Fernández MI.Contraceptive counselling experiences in Spain in the process of creating a web-based contraceptive decision support tool: a qualitative study. Reprod Health. 2021 Nov 27;18(1):237. doi: 10.1186/s12978-021-01254-0. PMID: 34838040; PMCID: PMC8626746.
De Molina-Fernandez MI; Reyes-Martí L; De la Flor-López M; Aguarón-García MJ; Roca-Biosca A; Rubio-Rico L; Raventós Torner RD; Valls-Fonayet F. Medication Adherence and Contraceptive Counseling. 2023. Healthcare (Basel). 11 (9): ISSN: 22279032. DOI (o URL en el su defecto): 10.3390/healthcare11091304
María José Hernández-Leal (Navarra, Spain)
Affiliation: Nurse and Ph.D. in Economics, Lecturer at the Faculty of Nursing at the Universidad de Navarra (UNAV). Additionally, engaged as a Researcher at the Millennium Nucleus on Sociomedicine (SocioMed) in Chile and Innovation for Person-Centered Care (Innovación para un cuidado centrado en la persona) in Pamplona, Spain. Dr. Hernández is also a member of the SIGMA Beta Tau Chapter in Miami, USA.
SDM Projects:
Dr. Hernández has conducted research on Shared Decision-Making (SDM) within the context of breast cancer screening in Chile and Spain. During this research, she developed a manual targeting healthcare professionals to enhance the implementation of SDM, along with an assessment of women’s stated preferences for decision-making. Currently, she is involved in research projects focusing on patients with Type II Diabetes Mellitus. Dr. Hernández specializes in Delphi methodologies, Discrete Choice Experiments, and Reviews. Finally, Dr. Hernández has recently served as a Research Fellow at Cardiff University.
Email: mhernandezl.1@unav.es
Website: https://www.unav.edu/web/departamento-de-enfermeria-comunitaria-y-materno-infantil/personal
- Hernández-Leal MJ, Pérez-Lacasta MJ, Feijoo-Cid M, Ramos-García V, Carles-Lavila M. Healthcare professionals’ behaviour regarding the implementation of shared decision-making in screening programmes: A systematic review. Patient Educ Couns. 2021 Aug;104(8):1933-1944. doi: 10.1016/j.pec.2021.01.032. Epub 2021 Jan 30. PMID: 33581968.
- Hernández-Leal MJ, Codern-Bové N, Pérez-Lacasta MJ, Cardona A, Vidal-Lancis C, Carles-Lavila M; ProShare Group. Development of support material for health professionals who are implementing Shared Decision-making in breast cancer screening: validation using the Delphi technique. BMJ Open. 2022 Feb 1;12(2):e052566. doi: 10.1136/bmjopen-2021-052566. PMID: 35105575; PMCID: PMC8808455.
- Hernández-Leal MJ, Pérez-Lacasta MJ, Cardona-Cardona A, Codern-Bové N, Vidal-Lancis C, Rue M, Forné C, Carles-Lavila M; Pro-Share Group. Women’s preference to apply shared decision-making in breast cancer screening: a discrete choice experiment. BMJ Open. 2022 Nov 8;12(11):e064488. doi: 10.1136/bmjopen-2022-064488. PMID: 36351714; PMCID: PMC9644356.
María Feijoo Cid
Affiliation: Registered nurse, Anthropologist and PhD in Medical Anthropology. Associate professor at the Nursing department, Faculty of Medicine, Universitat Autònoma de Barcelona.
SDM Projects:
In the field of SDM, she collaborates in the development and evaluation of decision aids of knee osteoarthritis. She also exores the decision-making process mn clinical trials.
Email: maria.feijoo@uab.cat
Website: https://portalrecerca.uab.cat/en/persons/maria-feijoo-cid-7
- Torrente-Jimenez RS, Feijoo-Cid M, Rivero-Santana AJ, et al. Gender differences in the decision-making process for undergoing total knee replacement. Patient Educ Couns. 2022;105(12):3459-3465. doi:10.1016/j.pec.2022.08.014
- Rivero-Santana, A., Torrente-Jiménez, R. S., Perestelo-Pérez, L., Torres-Castaño, A., Ramos-García, V., Bilbao, A., Escobar, A., Serrano-Aguilar, P., & Feijoo-Cid, M. (2021). Effectiveness of a decision aid for patients with knee osteoarthritis: a randomized controlled trial. Osteoarthritis and cartilage, 29(9), 1265–1274. https://doi.org/10.1016/j.joca.2021.06.005
- Feijoo-Cid, M., Arreciado Marañón, A., Huertas, A., Rivero-Santana, A., Cesar, C., Fink, V., Fernández-Cano, M. I., & Sued, O. (2023). Exploring the Decision-Making Process of People Living with HIV Enrolled in Antiretroviral Clinical Trials: A Qualitative Study of Decisions Guided by Trust and Emotions. Health care analysis : HCA : journal of health philosophy and policy, 31(3-4), 135–155. https://doi.org/10.1007/s10728-023-00461-z
Misericòrdia Carles-Lavila (Reus, Catalunya, Spain)
Affiliation: Ph.D. in Economics and Business. Associate professor of the Department of Economics at Rovira i Virgili University (URV) and member of the Research Centre on Economics and Sustainability (ECO-SOS). Currently a researcher of the ECO-NEX group (Economic Challenges for the Next Generation Research Group) which has been recognized and funded by the Generalitat de Catalunya (SGR-2021-00729).
SDM Projects:
Misericòrdia Carles-Lavila’s current research responds to the following focuses on efficiency analysis involving the development of economic evaluation models and the examination of their implications. One of the main consequences is related to the uncertainty about benefits and adverse effects of many of the health services and treatment. This necessitates transmitting detailed information and raises inquiries regarding how patients could participate in an informed decision-making process. This decision goes beyond the paternalistic model prevailing in the healthcare system and entails joint decision-making between the professional and the user (shared decision making).
Email: misericordia.carles@urv.cat
- Hernández-Leal MJ, Pérez-Lacasta MJ, Cardona-Cardona A, Codern-Bové N, Vidal-Lancis C, Rue M, Forné C, Carles-Lavila M; Pro-Share Group. Women ‘s preference to apply shared decision-making in breast cancer screening: a discrete choice experiment. BMJ Open. 2022 Nov 8;12(11):e064488. doi: 10.1136/bmjopen-2022-064488. PMID: 36351714; PMCID: PMC9644356.
- Hernández-Leal MJ, Codern-Bové N, Pérez-Lacasta MJ, Cardona A, Vidal-Lancis C, Carles-Lavila M; ProShare Group. Development of support material for health professionals who are implementing Shared Decision-making in breast cancer screening: validation using the Delphi technique. BMJ Open. 2022 Feb 1;12(2):e052566. doi: 10.1136/bmjopen-2021-052566. PMID: 35105575; PMCID: PMC8808455.
- Pérez-Lacasta MJ, Martínez-Alonso M, Garcia M, Sala M, Perestelo-Pérez L, Vidal C, Codern-Bové N, Feijoo-Cid M, Toledo-Chávarri A, Cardona À, Pons A, Carles-Lavila M, Rue M; with the InforMa Group. Effect of information about the benefits and harms of mammography on women’s decision making: The InforMa randomised controlled trial. PLoS One. 2019 Mar 26;14(3):e0214057. doi: 10.1371/journal.pone.0214057. PMID: 30913217; PMCID: PMC6435150.
María José Pérez-Lacasta (Reus, Catalunya, Spain)
Affiliation: Ph.D. in Economics at Barcelona University (UB). Associate professor of the Department of Economics at Rovira i Virgili University (URV) and member of Research Centre on Economics and Sustainability (ECO-SOS). Currently a researcher of the ECO-NEX group (Economic Challenges for the Next Generation Research Group) ) which has been recognized and funded by the Generalitat de Catalunya (SGR-2021-00729).
SDM Projects:
María José Pérez-Lacasta, specialist in Health Economics, utilizes Various methodological tools, including Economic Evaluation, Discrete Choice Experiment and Structural Equation Models, for the analysis of efficiency in decision-making process. In the current context of paradigm shift transitioning from a paternalistic model to one that empowers patients, the incorporation of new process alternatives in the analysis such as shared decision making aids health policy makers in their decision making endeavors.
Email: mariajose.perez@urv.cat
- Hernández-Leal MJ, Pérez-Lacasta MJ, Cardona-Cardona A, Codern-Bové N, Vidal-Lancis C, Rue M, Forné C, Carles-Lavila M; Pro-Share Group. Women’s preference to apply shared decision-making in breast cancer screening: a discrete choice experiment. BMJ Open. 2022 Nov 8;12(11):e064488. doi: 10.1136/bmjopen-2022-064488. PMID: 36351714; PMCID: PMC9644356.
- Hernández-Leal MJ, Pérez-Lacasta MJ, Feijoo-Cid M, Ramos-García V, Carles-Lavila M. Healthcare professionals’ behaviour regarding the implementation of shared decision-making in screening programmes: A systematic review. Patient Educ Couns. 2021 Aug;104(8):1933-1944. doi: 10.1016/j.pec.2021.01.032. Epub 2021 Jan 30. PMID: 33581968.
- Pérez-Lacasta MJ, Martínez-Alonso M, Garcia M, Sala M, Perestelo-Pérez L, Vidal C, Codern-Bové N, Feijoo-Cid M, Toledo-Chávarri A, Cardona À, Pons A, Carles-Lavila M, Rue M; with the InforMa Group. Effect of information about the benefits and harms of mammography on women’s decision making: The InforMa randomised controlled trial. PLoS One. 2019 Mar 26;14(3):e0214057. doi: 10.1371/journal.pone.0214057. PMID: 30913217; PMCID: PMC6435150.
Carmen Martín-Gómez (Seville, Andalusia, Spain)
Affiliation: Postdoctoral Researcher at Andalusian Health Technology Assessment Area (AETSA), Andalusian Public Foundation Progress and Health (FPS), Seville, Spain.
Yolanda Álvarez-Pérez (Tenerife, Canary Islands, Spain)
Affiliation: Canary Islands Health Research Institute Foundation (FIISC), Tenerife, Spain. Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain. Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS), Tenerife, Spain.
SDM Projects:
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Her main activity focuses on shared decision-making (SDM), evidence-based practice and critical appraisal of literature. She has also participated in research projects such as PI and was a member of the research team in various international, national and regional research projects related to Person-Centered Care (PCC), digital health literacy (DHL), patient empowerment and mental health.
- Álvarez-Pérez Y, Duarte-Díaz A, Toledo-Chávarri A, Abt-Sacks A, Ramos-García V, Torres-Castaño A, Rivero-Santana A, Perestelo-Pérez L. Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer. Int J Environ Res Public Health. 2023 Feb 22;20(5):3922. doi: 10.3390/ijerph20053922. PMID: 36900935; PMCID: PMC10001393.
- Perestelo-Perez L, Rivero-Santana A, Alvarez-Perez Y, Duarte-Díaz A, Ramos-García V, Torres-Castaño A, Abt-Sacks A, Toledo-Chavarri A, Alonso-Coello P, Orrego C, Serrano-Aguilar P. Shared decision-making in Spain in 2022: An updated revision of the current situation. Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:122-128. doi: 10.1016/j.zefq.2022.04.018. Epub 2022 May 25. PMID:35624010.
- Álvarez-Pérez Y, Perestelo-Pérez L, Rivero-Santanta A, Torres-Castaño A, Toledo-Chávarri A, Duarte-Díaz A, Mahtani-Chugani V, Marrero-Díaz MD, Montanari A, Tangerini S, González-González C, Perello M, Serrano-Aguilar P, On Behalf Of The Ic-Health Project Consortium. Co-Creation of Massive Open Online Courses to Improve Digital Health Literacy in Pregnant and Lactating Women. Int J Environ Res Public Health. 2022 Jan 14;19(2):913. doi: 10.3390/ijerph19020913. PMID: 35055733; PMCID: PMC8775560.
Andrea Duarte-Díaz (Tenerife, Canary Islands, Spain)
Affiliation: Canary Islands Health Research Institute Foundation (FIISC). Evaluation Unit of the Canary Islands Health Service (SESCS). Spanish National Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS). Spanish Network of Agencies for Health Technology Assessment (RedETS). Tenerife, Spain.
SDM Projects:
Andrea Duarte-Díaz has led and contributed to various projects at regional, national, and international levels. Her work focuses on promoting shared decision-making, enhancing patient empowerment, and improving health literacy across a range of physical and mental health conditions.
Email: andrea.durtediaz@sescs.es
- Duarte-Díaz, A., Perestelo-Perez, L., Rivero-Santana, A., Penate, W., & Carrion, C. (2023). The relationship between patient empowerment and related constructs, affective symptoms and quality of life in patients with type 2 diabetes: a systematic review and meta-analysis. Frontiers in Public Health, 11, 1118324. https://doi.org/10.3389/fpubh.2023.1118324
- Duarte‐Díaz, A., González‐Pacheco, H., Rivero‐Santana, A., Ramallo‐Fariña, Y., Perestelo‐Pérez, L., Peñate, W., … & INDICA Team. (2022). Factors associated with patient empowerment in Spanish adults with type 2 diabetes: A cross‐sectional analysis. Health Expectations, 25(6), 2762-2774. https://doi.org/10.1111/hex.13501
- Perestelo-Perez L, Rivero-Santana A, Alvarez-Perez Y, Duarte-Díaz A, Ramos-García V, Torres-Castaño A, Abt-Sacks A, Toledo-Chavarri A, Alonso-Coello P, Orrego C, Serrano-Aguilar P. Shared decision-making in Spain in 2022: An updated revision of the current situation. Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:122-128. doi: 10.1016/j.zefq.2022.04.018. Epub 2022 May 25. PMID:35624010. https://doi.org/10.1016/j.zefq.2022.04.018